After we got back from the field trip to Halsey on Friday, our focus shifted to the next task at hand, accessibility for Cade for this summer. We have been having some trouble with a wonderful program that Cade is a part of due to some administrative issues. This program would have helped put in … Continue reading Freedom for Cade
I just realized how long it has been since my last post! We are still going strong but busy. We are getting all things ready for summer here. We have planted seeds, prepared raised beds, tilled the garden, and have the chicks growing nicely. Seed starting is something new we took on this year. We … Continue reading We Are Still Here
Life has been a flurry of activity on the farm right now. Among all of the usual farm activities, we have also been rethinking and reworking our house in order to make access easier for Cade. So with that being said, here is a recap of our life recently. All those baby calves that have … Continue reading Brandings, Babies and Dirt
We have grabbed hold of the nice days we have been having and started running around our farm trying to accomplish a multitude of projects. This weekend was nice weather so we jumped right in and got to work. Our Saturdays this spring have been filled with trap shooting for Cole. So far the weather … Continue reading Taking Advantage
I'm not sure why it has taken me this long to have a post titled "This Is Duchenne". Maybe a small part of me still held out hope that all the medical documentation and genetic testing could still be wrong. That Cade could still be misdiagnosed. Maybe he had something less fatal. Or maybe because … Continue reading This Is Duchenne
After what seemed like an unendingly long and cold winter, spring has appeared to have taken the upper hand on the battle and is starting to win out. We've had many signs of spring here and Cade has been out enjoying every single one of them. It seems like we can't keep Cade inside these … Continue reading Spring Has FINALLY Arrived!!
Today is Cade's birthday and it is one he should definitely remember. The weather here is something I can't remember seeing before. The road by our house had water crossing it before the rain even came. It got warm enough to melt the snow and melt it did! There is just nowhere for the water … Continue reading Happy Birthday Cade!
Today was muscle clinic day. Overall we had great results and everything was relatively stable. Cade was not particularly thrilled with the blood draw to check his vitamin D levels or the flu shot but both were tolerated just fine. A lot of information comes at us in a short amount of time and sometimes … Continue reading Muscle Clinic Day
Day one of clinic days is in the books. Cade had his echo and EKG done and everything looked good. We he a really great technician for the echo today and it went really fast compared to last year. We then saw the doctor and discussed the results. While everything looked good we discussed adding … Continue reading Cardiology Day
This week is clinic week. The week I dread the most. We start with cardiology and end with muscle clinic day. This time we also have a neuropsych test. This test will help with school and how Cade is able to process his learning. The cardiology visit sets me on edge each time. I'm not … Continue reading Clinic Week is Here