This week is fair week. And fair week isn’t for the faint of heart. There are chores to be done, animals to groom and show, and projects to be completed.
Thursday was a day of mostly good things. Cade was able to show his calf and did really well. He was so excited and proud to be out there in the ring.
Plus we have an amazing 4-H family that we’re there to cheer him on. Our 4-H family is one of the best. They have helped us so much this year, especially since it will be Cole’s first time showing a market steer.
But along with all the amazing things that happen with fair week, there is a lot of work too. Thursday was a 10 hour day for Cade and a 12 hour day for Cole. Plus it was hot! And Friday we do it all over again.
Cade is exhausted but is still going along since he loves being there with all the animals. But then a dreaded question came out of his mouth on our drive home today. He asked me if his legs would continue to get weaker because they feel like they are getting weaker everyday.
In that moment, anger at DMD washed over me. I didn’t want to have to tell Cade that yes he would keep getting weaker. I just wanted to cry because it is not fair. But I had to be strong for him.
And so I told him yes, as of right now his legs would continue to get weaker but we were extremely hopeful about the research being done, especially in the area of gene therapy.
We got to end the day on a high note though because we received the itinerary for our Make a Wish trip. We have an early morning tomorrow to watch Cole with his market steer. It will be a better day, still a long one, but a good one nonetheless.