Hope. Hope for the future. That is how I am choosing to begin this post. I have great hope in our future. And while it is going to look radically different for us, I still hold onto hope. We celebrated the holidays in somewhat different fashion this year. Thanksgiving was very limited but we were … Continue reading Endings and Beginnings
2020 has really been quite the year. But we have had many amazing things happen in 2020 too. And now we are facing even more big changes too. To start, we are in the process of getting a Hoyer lift to aid with transfers for Cade. I can still manage everything for now but with … Continue reading Big Changes!
Today was a great day! Cade started bugging me this spring that he wanted to go hunting with his good friend Pat Moore. So I mentioned to his wife that Cade was wanting to hunt with Pat. So after some phone calls and some planning, it was determined that the great hunt would occur in … Continue reading Epic Antelope Hunt
We just wrapped up our muscle clinic trip and are currently on our way home. It was a good clinic visit and Cade is currently stable which is what we hope for. We did get everyone excited by stating that we are back in school in person and that we have a rockstar of a … Continue reading Our Next Adventure
Today is World Duchenne Awareness Day (WDAD). Every year on the 7th of September this day rolls around and until 3 years ago I didn’t even know anything about it or Duchenne for that matter. The reason for WDAD being held on the 7th day of September is the dystrophin gene which makes these boys … Continue reading World Duchenne Awareness Day
September is Muscular Dystrophy Awareness Month. In just 6 more days we will celebrate World Duchenne Awareness Day. And so this month we ask that you remember us and other families like us as we soldier on in this journey. Many of the families we have met became blind sided with their diagnosis. We did … Continue reading Muscular Dystrophy Awareness Month
September is quickly approaching and I had some big plans originally for Labor Day as it is World Duchenne Awareness Day. I had originally thought we would hold a 5k/walk of some sort and then we would also have t-shirts. But God has bigger plans than we do and so we are going with the … Continue reading Shirt Time!!
This is going to be a short post. I shared this on my personal Facebook page first and now I’m going to get this message out here. I am going to say something about masks. I hope I don't lose any more friends over this, but I feel strongly that I need to say this. … Continue reading All Call For Masks
We have had a lot going on for being stuck at home so much. We are learning to live in pandemic times and I pray that we are living it well. We are trying to teach the boys to take things in stride and to do the right thing always, even if it seems like … Continue reading All Things Summer
Today we went to visit a pheasant and game farm and hatchery. Jo had seen something on the news and thought Cade would love a tour. So she messaged place and asked if they did tours. I’m not sure if they normally do or not, but they were willing to let us come. So we … Continue reading It’s All About the People You Meet Along the Way