I have this other boy. He is 14 and full of sass and smells. He constantly rolls his eyes at me. He is taller than I am and thinks that he is stronger than I am. Yet, this boy also carries a deep burden. He is the sibling of a child with special needs. And … Continue reading Unsung Hero
The last couple of weeks have been full! We have stayed busy. During harvest, the guys (Brent included) all work long hours bringing the crop in. This means that I manage the house and boys and schedules on my own. While I wouldn’t change a thing about this life that we lead, this season doesn’t … Continue reading Hunting and Harvest
It’s hard to believe it is November. I just looked and it’s been over 2 weeks since I last wrote a post. One would think that maybe we haven’t been that busy. However it seems that we haven’t sat still for very long! So many great things have been happening for Cade and our family … Continue reading What Happened??
We have been abundantly blessed by the people and organizations that we have come into contact with since Cade's diagnosis. The Heartland DSC is definitely one of our many blessings. This organization’s mission is all about getting youth outdoors. And the greatest thing for us is that they have also made youth with disabilities a … Continue reading Heartland DSC is All HEART
I feel like I could write thousands of words and still never quite be able to describe what we have just experienced this last week. We came down to the lodge as strangers but left as family. I can’t believe that I felt so sad leaving people I have only known for 4 days. Cade … Continue reading New Mexico Family
Opening day of rifle elk season started off with an eager boy who, after worrying about having to wake up at 4:30 in the morning, was sure awake and ready to go. They put some camouflage on the chair and headed off to get set up. The night before we had went out spotting and … Continue reading The Hunt Is On
In three days our family travelled 906 miles! All of the car time has been worth it for the adventures we are taking though. It started off on Saturday with Coach to Cure MD. We were invited to be guests of Nebraska football for the game. The University really knew how to make these kids … Continue reading Adventure Awaits
I am sorry it has taken me this long to update about Cade’s clinic day. I have been in a real “I hate Duchenne” period of time and didn’t want to sound whiny when writing this post. However, not being sure when this period of time is going to pass and after quite a few … Continue reading All His Strength
We had just driven 4 hours and had an appointment with a pretty amazing team to have all the wind knocked out of our lungs. We came that day as normal parents, ones with hopes and dreams of grandchildren and career possibilities. We left that afternoon as Duchenne parents with a new goal of seeing … Continue reading So Now What?
Two and a half years ago, I had heard about muscular dystrophy, but knew no other information about it. We had known that Cade had some struggles with running, coordination, jumping, and going up stairs, but didn't yet know why. Then came the mention of muscular dystrophy. I didn't even know anyone with muscular dystrophy … Continue reading What is Duchenne?