Category: Uncategorized

Last week we headed back to Denver for a cardiology follow up (definitely not our normal) and muscle clinic day. Cardiology was to follow up after Cade’s cardiac MRI in March showed a mild decline in function. We needed a better understanding of if this was the beginnings of congestive heart failure or if it…… Continue reading Clinic Days and Coach to Cure

I set out this month trying to organize a few schools to participate in our version of Coach to Cure MD. I am excited to say that I have 3 other schools willing to participate! Coach to Cure MD occurs every year on the last Saturday in September with participating colleges. The coaching staff all…… Continue reading Coach to Cure High School

We have survived back to school and are starting to get into a good routine. And with back to school time comes football season and Cade has been in football heaven these last few days. The Swedes were supposed to open their season on Thursday which had meant I would not be able to go…… Continue reading September is Here

Yes, we are still here! We survived Cole’s graduation and are beginning to try to figure out what life will look like when Cole heads off to college! And we are also trying to gear Cade towards life after high school and whatever that may look like for him. So be prepared as we are…… Continue reading A Couple of Things

I have always known that our March clinic visits could get interesting with the weather. So far in this journey, we have been extremely fortunate with the weather cooperating while we have had to be at clinic. This time we weren’t quite as fortunate. The snowstorm was moving in! We knew we would be clear…… Continue reading March Clinic and Snowstorm

We made it home. We busted out of the hospital on Sunday. Cade was extremely anxious about the drive home. But we carefully made a plan with our nurse for timing of meds and what we could do if we needed to and set out on the journey home. For as nervous and anxious Cade…… Continue reading Home Sweet Home

We finally turned a corner on Friday! We used a LOT of distraction to be able to stretch the pain med schedule out. We were trying to get it so we wouldn’t have a big of a crash in between his doses. And we accomplished our goal. He also had to have his post-op x-rays.…… Continue reading Surgery Recovery Part 2

Today was a bit of an up and down day. The morning started off really rough when we got behind his pain. We were trying to get on a good schedule but the nausea and no appetite played a huge role in the scheduling of the pain meds. After such a rough start to the…… Continue reading Surgery Recovery Part 1

We arrived at the hospital at 5:30 in the morning to begin the long surgery day. Brent and I were able to be in the room with Cade until they wheeled him back to the operating room. They wheeled him back at about 7:30 in the morning. It was definitely a lot harder to watch…… Continue reading Spinal Fusion Success