I am not a very patient person. I can seem like it on the outside but my insides are crawling as I wait on people. And then I married a man who always gets things done but does not see my vision for rushing through it. He moves at a steady pace and things turn out really well when I follow his lead. Most of the time however, I feel like I am about to burst as I try to push my family along.
And then comes along DMD! Hurrying is not good for Cade. He starts to get anxious about it and then falls happen. And crabbiness sets in. For both him and I.
One of my favorite verses is Psalm 46:10 “Be still and know that I am God.” However, stillness is something that seems to elude me.
These thoughts hit me hard when I was looking at the photographs we had Suzie Wahlgren take. She is an amazing photographer. But on the day we had them taken, I had several other things going on. But looking at those photos, it was like looking at time standing still.
I have realized now that family pictures are becoming more important to me than ever. I want to be able to look back and remember the times without DMD. I want to be able to look back and remember the times when DMD wasn’t so bad.
I also want to remember that at this time, even after diagnosis, we were still happy. Is it hard? You bet, but we can still find joy.
I am working on being still. DMD brought that work to top priority for me. So I’ll take any prayers on that issue that you will offer.