We just wrapped up our muscle clinic trip and are currently on our way home. It was a good clinic visit and Cade is currently stable which is what we hope for. We did get everyone excited by stating that we are back in school in person and that we have a rockstar of a … Continue reading Our Next Adventure
Today is World Duchenne Awareness Day (WDAD). Every year on the 7th of September this day rolls around and until 3 years ago I didn’t even know anything about it or Duchenne for that matter. The reason for WDAD being held on the 7th day of September is the dystrophin gene which makes these boys … Continue reading World Duchenne Awareness Day
September is Muscular Dystrophy Awareness Month. In just 6 more days we will celebrate World Duchenne Awareness Day. And so this month we ask that you remember us and other families like us as we soldier on in this journey. Many of the families we have met became blind sided with their diagnosis. We did … Continue reading Muscular Dystrophy Awareness Month
September is quickly approaching and I had some big plans originally for Labor Day as it is World Duchenne Awareness Day. I had originally thought we would hold a 5k/walk of some sort and then we would also have t-shirts. But God has bigger plans than we do and so we are going with the … Continue reading Shirt Time!!
This is going to be a short post. I shared this on my personal Facebook page first and now I’m going to get this message out here. I am going to say something about masks. I hope I don't lose any more friends over this, but I feel strongly that I need to say this. … Continue reading All Call For Masks
We have had a lot going on for being stuck at home so much. We are learning to live in pandemic times and I pray that we are living it well. We are trying to teach the boys to take things in stride and to do the right thing always, even if it seems like … Continue reading All Things Summer
Today we went to visit a pheasant and game farm and hatchery. Jo had seen something on the news and thought Cade would love a tour. So she messaged place and asked if they did tours. I’m not sure if they normally do or not, but they were willing to let us come. So we … Continue reading It’s All About the People You Meet Along the Way
This year has come in roaring like a lion and changing everything about life as we know it. I think all of us around here thought that it couldn’t get much worse than 2019 but here we are sitting at our house on Easter, practicing social distancing to do our part! We know that it … Continue reading Easter Blessings
Today I was up long before Cade and Brent. A long time to be alone with my thoughts so I decided to will myself to change my mindset of having extra time to be alone with God. My heart was definitely trying to betray me during this time but every time I lost focus I … Continue reading Matter of the Heart
It's crazy to think that some days you can lead a fairly normal life with Duchenne, but then out of nowhere, you get blindsided with anxiety and grief. We have been dealing with some weakening with Cade and I thought that I had it all under control. Truth is though, that while my interactions and … Continue reading BAM!!