Category: Uncategorized

I’m not sure why it has taken me this long to have a post titled “This Is Duchenne”. Maybe a small part of me still held out hope that all the medical documentation and genetic testing could still be wrong. That Cade could still be misdiagnosed. Maybe he had something less fatal. Or maybe because…… Continue reading This Is Duchenne

After what seemed like an unendingly long and cold winter, spring has appeared to have taken the upper hand on the battle and is starting to win out. We’ve had many signs of spring here and Cade has been out enjoying every single one of them. It seems like we can’t keep Cade inside these…… Continue reading Spring Has FINALLY Arrived!!

Today is Cade’s birthday and it is one he should definitely remember. The weather here is something I can’t remember seeing before. The road by our house had water crossing it before the rain even came. It got warm enough to melt the snow and melt it did! There is just nowhere for the water…… Continue reading Happy Birthday Cade!

Today was muscle clinic day. Overall we had great results and everything was relatively stable. Cade was not particularly thrilled with the blood draw to check his vitamin D levels or the flu shot but both were tolerated just fine. A lot of information comes at us in a short amount of time and sometimes…… Continue reading Muscle Clinic Day

Day one of clinic days is in the books. Cade had his echo and EKG done and everything looked good. We he a really great technician for the echo today and it went really fast compared to last year. We then saw the doctor and discussed the results. While everything looked good we discussed adding…… Continue reading Cardiology Day

This week is clinic week. The week I dread the most. We start with cardiology and end with muscle clinic day. This time we also have a neuropsych test. This test will help with school and how Cade is able to process his learning. The cardiology visit sets me on edge each time. I’m not…… Continue reading Clinic Week is Here

I’ve realized a couple of things recently. One is that we are living a pretty normal life right now. We are truly blessed to have such amazing friends and a supportive community. Cade really wanted to go watch his buddies play basketball last weekend. Their tournament was in Cambridge which is about an hour away.…… Continue reading Future Plans

I feel like I have been a little absent from here recently. It seems like this cold weather won’t give up and while we have been noticing and enjoying the longer days, the cold makes it a little brutal for Cade to try to help with anything outside. Maybe that is why it seems like…… Continue reading Unrelenting!

Last night, the pastor that married Brent and I went to be with Jesus. He was a great family friend, a good cowboy, and a wonderful example of how to live a godly life. This man knew Brent his entire life and I came to know him about 20 years ago. I will still remember…… Continue reading Unstandard Measurements

The boys have gone back to school and a routine has started to take a little shape at our house. School is going, we’ve went to the Make a Wish Christmas party, we’ve started basketball, and we started archery league. The Make a Wish Christmas party was held the first weekend of January and Cole…… Continue reading Basketball and Archery