Category: Uncategorized

The day finally arrived for the field trip. I had many worries about this trip. It was going to be an early morning. It was going to be a long day. It was going to involve a lot of walking. It may bring about questions about Cade and DMD that I may not be able…… Continue reading Another First

We have been taking advantage of any nice day, which hasn’t been as many as we would like, to continue working on the coop. We have now moved the coop to its permanent location. We have also began work on the pen. We have several of the posts placed and even now have some of…… Continue reading Work, Work, Continuing Work

Happy Easter everyone. I pray that you all are enjoying this day. It’s plenty snowy here but it reminds me of the fact that Jesus’ sacrifice and resurrection made me as white as snow. And then I came to a problem. I realized that I have been committing a sin over and over in the…… Continue reading Happy Easter

I rewatched an episode of Fixer Upper where they team up with the Tim Tebow Foundation and fix a house to be handicap accessible for the two boys who will live there. I was watching some HGTV for inspiration for the building of the chicken coop. Today was the day we were going to get…… Continue reading I Can and I Will

Today concluded birthday week for Cade. We had his friend birthday party today. When I first began asking Cade what he wanted to do for his friend party, I was horrified to hear that he wanted to have his party outside at our house…and play football!! I tried to change his mind with other ideas.…… Continue reading What Will We Do Next Week?

Close your eyes, make a wish and blow out all your candles. Every year the wishes changes for Cade but mine have stayed relatively similar. While Cade is wishing for some new toy or something along those lines, here are my revised wishes for him. 1. I wish you have the determination in all things…… Continue reading Birthday Wishes

This is Cade’s birthday week. He will officially hit double digits on Wednesday. I have tried thinking back to the worries we had a year ago. Last year at this time, I was worried that the weather wouldn’t hold up for his friend party. I was worried that his friends would get lost on the…… Continue reading Birthday Week

With spring comes lots of new growth. It Cade’s favorite time right now. He loves to go with Brent and check for new baby calves. He is also very excited to get the raised garden built and ready for plants. I don’t think he has narrowed down his plant selection yet, but maybe when he…… Continue reading It’s Spring Time (Well Almost)!

Today we spent all morning in muscle clinic. We start muscle clinic at 8:30 in the morning and it usually ends right at lunch. Today we saw the physical therapist, the nurse practitioner, the nurse, a doctor, a dietitian, a social worker, an orthotist, and a representative about wheelchairs. The physical therapist came in first…… Continue reading Muscle Clinic Day

Today is Rare Disease Day. Duchenne is a rare disease. Today was also our first cardiology appointment for Cade. So far everything that has been thrown at us I have been able to just process through. This appointment however, has caused me concern. Cardiac involvement would make things more complicated for Cade. And right now…… Continue reading Rare Disease Day