Category: Uncategorized

So first off, we are still here. Life has just been crazy busy and I needed to take some time away from worrying about updating the blog. But we are here and had many changes happen since my last post. First off, we have moved. We renovated the house next door to my in-laws after…… Continue reading Surgery Day

We had clinic a month ago and everything went really well while we were out there. Everything was relatively stable and we got some hopeful news that the boys may be able to get their Covid vaccine by this summer. So everything went really well. And when we came back I had renewed energy to…… Continue reading Wrestling??

We’ve been kinda busy around here. Both boys had basketball, Cole’s continuing and Cade’s starting after Christmas. Cade decided to be the student manager for the 7th grade basketball team. It was great for him to figure out a way to be included in sports with the other boys in his grade. We are still…… Continue reading Clinic Time Again

Hope. Hope for the future. That is how I am choosing to begin this post. I have great hope in our future. And while it is going to look radically different for us, I still hold onto hope. We celebrated the holidays in somewhat different fashion this year. Thanksgiving was very limited but we were…… Continue reading Endings and Beginnings

2020 has really been quite the year. But we have had many amazing things happen in 2020 too. And now we are facing even more big changes too. To start, we are in the process of getting a Hoyer lift to aid with transfers for Cade. I can still manage everything for now but with…… Continue reading Big Changes!

Today was a great day! Cade started bugging me this spring that he wanted to go hunting with his good friend Pat Moore. So I mentioned to his wife that Cade was wanting to hunt with Pat. So after some phone calls and some planning, it was determined that the great hunt would occur in…… Continue reading Epic Antelope Hunt

We just wrapped up our muscle clinic trip and are currently on our way home. It was a good clinic visit and Cade is currently stable which is what we hope for. We did get everyone excited by stating that we are back in school in person and that we have a rockstar of a…… Continue reading Our Next Adventure

Today is World Duchenne Awareness Day (WDAD). Every year on the 7th of September this day rolls around and until 3 years ago I didn’t even know anything about it or Duchenne for that matter. The reason for WDAD being held on the 7th day of September is the dystrophin gene which makes these boys…… Continue reading World Duchenne Awareness Day

September is Muscular Dystrophy Awareness Month. In just 6 more days we will celebrate World Duchenne Awareness Day. And so this month we ask that you remember us and other families like us as we soldier on in this journey. Many of the families we have met became blind sided with their diagnosis. We did…… Continue reading Muscular Dystrophy Awareness Month

September is quickly approaching and I had some big plans originally for Labor Day as it is World Duchenne Awareness Day. I had originally thought we would hold a 5k/walk of some sort and then we would also have t-shirts. But God has bigger plans than we do and so we are going with the…… Continue reading Shirt Time!!