I feel like I could write thousands of words and still never quite be able to describe what we have just experienced this last week. We came down to the lodge as strangers but left as family. I can’t believe that I felt so sad leaving people I have only known for 4 days. Cade … Continue reading New Mexico Family
Opening day of rifle elk season started off with an eager boy who, after worrying about having to wake up at 4:30 in the morning, was sure awake and ready to go. They put some camouflage on the chair and headed off to get set up. The night before we had went out spotting and … Continue reading The Hunt Is On
In three days our family travelled 906 miles! All of the car time has been worth it for the adventures we are taking though. It started off on Saturday with Coach to Cure MD. We were invited to be guests of Nebraska football for the game. The University really knew how to make these kids … Continue reading Adventure Awaits
I am sorry it has taken me this long to update about Cade’s clinic day. I have been in a real “I hate Duchenne” period of time and didn’t want to sound whiny when writing this post. However, not being sure when this period of time is going to pass and after quite a few … Continue reading All His Strength
We had just driven 4 hours and had an appointment with a pretty amazing team to have all the wind knocked out of our lungs. We came that day as normal parents, ones with hopes and dreams of grandchildren and career possibilities. We left that afternoon as Duchenne parents with a new goal of seeing … Continue reading So Now What?
Two and a half years ago, I had heard about muscular dystrophy, but knew no other information about it. We had known that Cade had some struggles with running, coordination, jumping, and going up stairs, but didn't yet know why. Then came the mention of muscular dystrophy. I didn't even know anyone with muscular dystrophy … Continue reading What is Duchenne?
One of my favorite bible verses is Psalm 46:10 which says: "Be still and know that I am God...". But if I'm honest being still is not really a strength of mine. But after the last week, this verse keeps repeating itself in my head. This month is Muscular Dystrophy Awareness Month. I was trying … Continue reading Being Still
We have been keeping a little secret from the boys for a couple of weeks now. This weekend's trip was to reveal that secret. It all started when Cade came to stay with Amber and Micah. While there, he met a coworker of Micah's, Melissa Brown, who is a board member of the Heartland DSC. … Continue reading A BIG Reveal
Tomorrow we will have one week of school officially under our belt. I have also come to learn that I and Cade have a great deal of anxiety about back to school. I hesitated writing this too soon because our school system is amazing and the staff is top notch! I didn't want to distract … Continue reading Back to School
One week ago, I was preparing for farmers market and packing Cade to go spend a few days in Lincoln with his aunt. I kept going along while waiting for Cade's anxiety to set in. But the anxiety never came! No questions on how he would get to bed. No questions about how he would … Continue reading Carefree!!